Terminal Illness (Provision of Palliative Care and Support for Carers) Bill
Official Summary
A Bill to require the provision of comprehensive palliative care to those with terminal illnesses, including adults over the age of 60; to require certain public bodies to co-operate with hospices in the provision of palliative care; to make provision for support for those caring for individuals with a terminal illness; and for connected purposes.
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Overview
This bill aims to improve palliative care for terminally ill individuals in England and Wales, focusing on better integration of services, support for those over 60, and assistance for carers. It also mandates information sharing to help carers claim benefits.
Description
The bill introduces a duty on the Secretary of State to promote comprehensive palliative care, requiring annual reports to Parliament on progress. This includes integrating services from various bodies (local authorities, NHS, community care providers), specifically supporting those over 60, and improving public understanding of palliative care.
Clinical commissioning groups (CCGs) must assess palliative care needs, provide services accordingly, collaborate with hospices and voluntary sector providers, and publish data on service provision times following assessment via the “Fast Track Pathway Tool.”
The bill mandates that information on claiming carer's allowance be sent to carers of terminally ill individuals receiving specific qualifying benefits, including Universal Credit, Employment and Support Allowance, Personal Independence Payment, Disability Living Allowance, and Attendance Allowance.
Government Spending
The bill doesn't specify direct government spending figures. The cost will depend on the implementation of improved services and increased support for carers through existing benefit systems. Additional resources may be required for better service integration and public awareness campaigns.
Groups Affected
Terminally ill individuals (particularly those over 60): Will benefit from improved access to and quality of palliative care.
Carers of terminally ill individuals: Will receive information about claiming carer's allowance, potentially reducing financial strain.
Clinical commissioning groups (CCGs): Will have increased responsibilities for planning and providing palliative care services and reporting.
Hospices and voluntary sector palliative care providers: Will be involved in collaborative service provision with CCGs.
Local authorities and NHS organisations: Will be involved in the integration of palliative care services.
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